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4 Articles

CORD submission to PMPRB Scoping Paper consultation on new Guidelines

This week CORD submitted its feedback to the PMPRB’s new Scoping Paper on upcoming guidelines. We are encouraged that the…

RARE DISEASE DAY 2024 CANADIAN ILLUMINATIONS

On February 29, 2024 these monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Amherst Town Hall…

Join us Feb. 29th for our march on Parliament Hill!

📢 Attention Rare Disease Community: On the occasion of Rare Disease Day on Thursday, February 29th, and as part of our #FightForOurLivesadvocacy…

New patient registries will improve health care and outcomes for children and families living with rare diseases

Ottawa, Ontario — Friday May 10, 2024 Until now, no patient registries have existed in Canada for mucopolysaccharide (MPS) and…

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